As we are aware, sudden change is never easy and often bewildering, but for young people on the autistic spectrum, it is especially difficult to navigate – and sometimes distressing.
The coronavirus spread has resulted in unavoidable change, leading to the closure of many schools and community settings, with the intention of slowing the pandemic. This has meant that many families are having to change their routines, if not their lives, which is creating unique issues for caregivers and people with autism.
Leading professionals such as child and adolescent psychiatrists, who work with autistic children and their families – say the important thing to remember is that people with autism, and those who look after them, need to be part of the conversation. And UK Autistic couldn’t agree more.
Talk to the autistic child about the outbreak, don’t avoid it.
Give children facts regarding the coronavirus, and reassure them that we are all in this together, but try not to have the news on the television or radio too much and try to encourage a child not to search for further information on the internet, as misinformation is likely to raise anxiety.
If they are disappointed about activities that were planned being cancelled, you could make a poster with them of the activities to be rebooked when possible so they know they will not be forgotten.
Take the time to plan a new schedule and involve the child.
As usual daily routines will no longer in place, it is important to replace these with new schedules and timetables.
Parents and carers will be extremely anxious to minimise any distress to an autistic child, so wherever possible, it’s best to involve the young person in planning a new schedule and routine.
If the child needs to be at home, leaving the day unstructured is likely to be far more stressful than creating a new timetable to follow. Routine is key.
Managing changes at home.
It’s really helpful to discuss the consistent behavioural strategies you will use, as needed, with your child so everyone is singing from the same hymn sheet in terms of behavioural boundaries.
For example, if you are starting to find that you can’t get the food that you usually buy on your weekly shop, for example, you could consider making an inventory of food that is available to you with your child, and plan meals a few days or a week in advance if possible so if the food is slightly different from normal, in that way the young person has been given some notice of this.
With most of the family being at home, rather than at school or work, it is important to help a child navigate this new environment. It’s important to consider noise levels in the house if more of you are at home than normal. Due to sensory sensitivities, the young person may become more aroused with more people in the house. Think about how you can minimise this. Does the young person need to use ear defenders at home or listen to their music through head phones?
Or perhaps they have a quiet space they can go to if needed, with items in that space that will calm them.
You could try talking to the child about the early warning signs that show they might be becoming over-stimulated. Have an agreement that if they feel these signs or you spot them, there is a code word or a sign they can use, and that is when they can always access their quiet space to calm.
Maintain a good sleep pattern. Routine again.
Sleep is so important to mental state, and I would include:
- No caffeine after midday
- Engaging in some form of exercise if possible in the day
- Only using the bed for sleep at night time (not sitting on it on iPads during the day, for example)
- No screens an hour before bed
- Establishing and maintaining a bed time routine so the body learns the next thing in the routine is sleep
- Go to bed at the same time every day and get up at the same time every day, whether a week day or weekend
Encourage virtual meet-ups
Try to help your child stay in touch with the people they are close to. You should perhaps encourage some form of contact via the internet or phone with their friends so that social anxieties do not grow when they reintegrate with their friends and fellow pupils, and social distancing ceases. There is also useful information from charities including UK Autistic.
It is important for families to follow all official Public Health England advice around frequent hand washing and social distancing of course. But rules have just been relaxed for those on the spectrum, so read our post on that and feel free to join our Facebook Group – The People Of UK Autistic to discuss, we need to get it busy, so please get involved!